Comments on: Songwriter stricken with ALS gives voice to new Lou Gehrig Day in baseball

By: Grace Nathan's

Grace Nathan's — Mon, 27 Jan 2025 14:39:23 +0000

My husband was diagnosed August 2022. It was hard and I cry daily but not in front of him unless we cry together. He couldn’t find anything to give him happiness or hope. We have been focusing on our faith. He was only losing his voice before we made the decision to try different medications, which significantly enhanced his condition. He received the ALS/MND treatment for his ALS approximately four months ago; since then, he has stopped using a feeding tube, speech is getting better by the day, sleeps well, works out frequently. I’m surprised a lot of CALs, and their PALS haven’t heard of it, google uine healthcentre. com. My husband has become very active

By: Meyer Odette

Meyer Odette — Fri, 06 Sep 2024 03:44:40 +0000

I am a CALS of my 68 year old Husband who suffered from muscle tiredness brought on by chronic fatigue in its early stages. Neurologists first had difficulty diagnosing it until multiple examinations indicated ALS, for which there was no known cure other than the prescription of riluzole medications, vitamins, and therapies. More advancements in breathing difficulties, difficulty pronouncing words, and difficulties eating occurred before we made the decision to try different medications, which significantly enhanced his condition. He received treatment for ALS/MND at vinehealthcentre. com from the U.S approximately four months ago; since then, he has stopped using a feeding tube, sleeps well, works out frequently, and has become very active. Although it doesn’t cure his ALS, it has improved his quality of life. .

By: Katherine Bhana

Katherine Bhana — Mon, 18 Mar 2024 09:09:10 +0000

ALS is a cruel disease. My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. this year our primary physician started her on Natural Herbs Centre ALS/MND Ayurvedic treatment, 6 months into treatment she improved dramatically. It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly!

By: cory merlon

cory merlon — Fri, 08 Mar 2024 15:55:21 +0000

My first ALS symptom occurred in 2016, but was diagnosed in 2018. I had severe symptoms ranging from shortness of breath, balance problems, couldn’t walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then I decided to try alternative measures and began on ALS Formula treatment from Aknni herbs centre, It has made a tremendous difference for me (Visit ww w. aknniherbscentre.c om). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others.

By: Mark Liston

Mark Liston — Mon, 31 May 2021 21:03:28 +0000

What a powerful article. I’m so glad I saw this article just two days from the 2nd. Very close friends will be at the Cubs game that day. I can’t wait to tell him all about what will happen.

I remember doing the Bucket Challenge and throwing $100 into the pot to help the cause. Little did I know how important it would someday be.
He
A couple years ago my wife got a call from her brother informing her that he had ALS. They are just a year apart which reminded MK (my wife) of her mortality. We knew something was wrong – just didn’t know what. He knew something was wrong and didn’t want to go to the doctor in case he was given X amount of time to live. He told MK that he would have 2 – 3 years from the day he was diagnosed. That is how he would cheat death.

ALS is horrible. Slowly he lost strength in his arms and his legs. He couldn’t even shift the gear on his 4 wheeler – something we got for him so he could get around his property. Next it was his voice. As time went on he couldn’t hold up his head anymore.

MK retired so she could spend more time with him. We read and watched all we could to try and learn all we could. As you wrote, his mind was a sharp as it ever way. Everything else, however, was slowly failing.

Near the end of February, about the same time you were writing your story, he was taken to the hospital because he couldn’t breath. Because he was a Veteran the VA was so helpful with a special wheelchair and was even helping outfit the house for it. They also contributed to a van that could transport him.

When MK got the call he was headed to the hospital she made immediate plans to fly to the hospital. So did another sister. Their sister in law, Pat, had been part of the family for 48 years and the fam wanted to support her . . . just in case.

As life dwindled down the sisters hoped he could make it to April 1st. He was born on All-Saints day 67 years ago and he was anything but a saint. Making it to April 1st, for obvious reasons, would be appropos. He made it until 2:30 a.m. For hours they played rock and roll in the background knowing he would just love it. At 2:29 an Elvis song came on. He hated Elvis!

I iinvite you to read the following blog that I wrote shortly after he died.
https://markliston.wixsite.com/website/post/how-long-do-i-have

Yea for Brian Galentine and the other ALS victims you wrote about. They were all heroes because of facing the horrid disease. Now, baseball can celebrate Gehrig like he should have be celebrated these past 82 years.